Resources
Eating disorders thrive in isolation. Curiosity—especially shared curiosity—is one way we start dismantling them.
Below are two places worth knowing about, depending on what you need right now.
If you’re looking for support:
If you’re curious about wanting to help move the science forward:
The Broad Institute’s Eating Disorder Sequencing Program, funded by the Klarman Family Foundation, aims to investigate the rare and common genetic variations contributing to anorexia nervosa, atypical anorexia, bulimia nervosa, and atypical bulimia nervosa. The goal is to collect 20,000 samples. In plain English: They are collecting DNA and detailed lived-experience data from people with eating disorders to figure out what’s actually happening under the hood.
This matters because eating disorders have long been treated as if they were purely behavioral or psychological failures of will. Genetics tells a more complicated—and more humane—story.
If you are interested in contributing to research, this is a way to do that without becoming a lab rat or a cautionary tale. They are enrolling both people with and without a history of any eating disorder. Participation helps researchers identify biological pathways involved in eating disorders, which is how new, targeted treatments eventually get developed.
It’s also where the future is heading.
If GLPs saved my life, research is how we save the next one.